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5-year-old social media star Elis Lima Carneiro dies after battling rare genetic disorder

Her family shared her fight with the condition on social media as she grew into a small online presence.

Published Oct 1, 2026, 1:36 PM EDT | LehighValleyLive

Elis Lima Carneiro, whose family documented her battle with a rare genetic disorder on social media, has died. She was 5.