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Parents share son’s story after rare Clarkson disease death

A routine stomachache on a summer trip became a life-threatening emergency; the family hopes sharing 5-year-old Justin Vu’s story will raise awareness of Clarkson disease.

Published Jul 30, 2026, 10:20 AM EDT | LehighValleyLive

A Colorado family is sharing the story of their 5-year-old son after what began as a stomachache during a summer vacation turned into a medical emergency caused by one of the rarest diseases ever documented. Justin Vu died just five days after being hospitalized, and his parents hope his story raises awareness of a condition many physicians never encounter during their careers, Fox 31 News reported.